{"id":1638,"date":"2021-02-09T23:30:27","date_gmt":"2021-02-09T22:30:27","guid":{"rendered":"http:\/\/klubcf.sk\/?p=1638"},"modified":"2021-02-23T14:04:57","modified_gmt":"2021-02-23T13:04:57","slug":"prieskum-k-orkambi","status":"publish","type":"post","link":"https:\/\/klubcf.sk\/index.php\/2021\/02\/09\/prieskum-k-orkambi\/","title":{"rendered":"Prieskum k lieku ORKAMBI pomocou kr\u00e1tkeho formul\u00e1ra."},"content":{"rendered":"<p>Formul\u00e1r sl\u00fa\u017ei na prezentovanie v\u00fdsledkov lie\u010dby liekom Orkambi.<\/p>\n<p>Jeho v\u00fdsledky bude Klub CF vyu\u017e\u00edva\u0165 pri tvoren\u00ed podporn\u00fdch dokumentov pri \u010fal\u0161ej komunik\u00e1ci\u00ed s \u00faradmi oh\u013eadom spr\u00edstupnenia modernej lie\u010dby CF pacientom v Slovenskej Republike.<\/p>\n<p>Odpor\u00fa\u010dame, aby za pacientov do veku 12 rokov formul\u00e1r vyplnil rodi\u010d, alebo z\u00e1konn\u00fd z\u00e1stupca v mene die\u0165a\u0165a. Pros\u00edme o zapojenie aj \u013eud\u00ed, ktor\u00ed maj\u00fa mut\u00e1cie na u\u017e\u00edvanie Orkambi, ale ho neu\u017e\u00edvaj\u00fa.&nbsp;<\/p>\n<h1><a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSfkzvNwbJgN7_L6-nq99UxFVoXo0MsrdlfaVqGBtyIDi6seeA\/viewform?vc=0&amp;c=0&amp;w=1&amp;flr=0&amp;gxids=7628&amp;fbzx=7637970797905589573\">FORMUL\u00c1R N\u00c1JDETE TU<\/a><\/h1>\n<p>&nbsp;<\/p>\n<p>Zapojte sa \u010eAKUJEMEKLUB CF<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Formul\u00e1r sl\u00fa\u017ei na prezentovanie v\u00fdsledkov lie\u010dby liekom Orkambi. Jeho v\u00fdsledky bude Klub CF vyu\u017e\u00edva\u0165 pri tvoren\u00ed podporn\u00fdch dokumentov pri \u010fal\u0161ej komunik\u00e1ci\u00ed s \u00faradmi oh\u013eadom spr\u00edstupnenia modernej lie\u010dby CF pacientom v Slovenskej Republike. Odpor\u00fa\u010dame, aby za pacientov do veku 12 rokov formul\u00e1r vyplnil rodi\u010d, alebo z\u00e1konn\u00fd z\u00e1stupca v mene die\u0165a\u0165a. Pros\u00edme o zapojenie aj \u013eud\u00ed, ktor\u00ed [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":1646,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[2],"tags":[],"class_list":["post-1638","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-cysticka-fibroza"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Prieskum k lieku ORKAMBI pomocou kr\u00e1tkeho formul\u00e1ra. - klubcf.sk<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/klubcf.sk\/index.php\/2021\/02\/09\/prieskum-k-orkambi\/\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Prieskum k lieku ORKAMBI pomocou kr\u00e1tkeho formul\u00e1ra. - klubcf.sk\" \/>\n<meta property=\"og:description\" content=\"Formul\u00e1r sl\u00fa\u017ei na prezentovanie v\u00fdsledkov lie\u010dby liekom Orkambi. 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