{"id":29,"date":"2017-11-20T22:52:40","date_gmt":"2017-11-20T21:52:40","guid":{"rendered":"http:\/\/klubcf.sk\/?page_id=29"},"modified":"2018-05-02T20:22:05","modified_gmt":"2018-05-02T18:22:05","slug":"cysticka-fibroza","status":"publish","type":"page","link":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/","title":{"rendered":"Cystick\u00e1 fibr\u00f3za"},"content":{"rendered":"

Cystick\u00e1 fibr\u00f3za je z\u00e1va\u017en\u00e9 genetick\u00e9 ochorenie, ktor\u00e9 negat\u00edvne ovplyv\u0148uje kvalitu \u017eivota a pred\u010dasne ho skracuje. CF nie je n\u00e1kazliv\u00e1! Je to dedi\u010dn\u00e9 ochorenie, s ktor\u00fdm sa \u010dlovek narod\u00ed. V s\u00fa\u010dasnosti je mo\u017en\u00e9 CF odhali\u0165 u\u017e prenat\u00e1lne. \u017d\u013eazy s vonkaj\u0161\u00edm vylu\u010dovan\u00edm tvoria abnorm\u00e1lne hust\u00fd a patologick\u00fd hlien, ktor\u00fd sa usadzuje na slizniciach a upch\u00e1va \u017eivotne d\u00f4le\u017eit\u00e9 org\u00e1ny. V p\u013e\u00facach sa n\u00e1sledne us\u00e1dzaj\u00fa bakt\u00e9rie, sp\u00f4sobuj\u00face \u0165a\u017ek\u00e9 infekcie a z\u00e1paly. Postupne sa tu tvoria nenapravite\u013en\u00e9 zmeny. Podobne je postihnut\u00fd aj pankreas, ktor\u00fd nevylu\u010duje dostato\u010dn\u00e9 mno\u017estvo enz\u00fdmov potrebn\u00fdch na str\u00e1venie potravy. CF postihuje aj pohlavn\u00e9 org\u00e1ny, pe\u010de\u0148, pr\u00ednosov\u00e9 dutiny, \u010dasto sa pridru\u017e\u00ed aj cukrovka. D\u00e1 sa poveda\u0165, \u017ee CF postupne zasiahne v\u0161etky org\u00e1ny, jedin\u00e9, \u010do nijako neovplyv\u0148uje je intelekt. Deti s CF s\u00fa intelektovo a psychicky norm\u00e1lne, odli\u0161uj\u00fa sa od svojich rovesn\u00edkov len fyzick\u00fdm oslaben\u00edm. <\/span><\/span><\/span><\/p>\n

Ak\u00e9 s\u00fa pr\u00edznaky CF?<\/b><\/span><\/span><\/span><\/strong><\/p>\n

–  ve\u013emi slan\u00fd pot (5-6x slan\u0161\u00ed ako u zdravej popul\u00e1cie) <\/span><\/span><\/span>
\n<\/span><\/span>–  probl\u00e9my s d\u00fdchan\u00edm <\/span><\/span><\/span>
\n<\/span><\/span>–  trval\u00fd ka\u0161e\u013e, hlavne pri telesnej z\u00e1\u0165a\u017ei (spriechod\u0148uje d\u00fdchacie cesty)  <\/span><\/span><\/span>
\n<\/span><\/span>–  chronick\u00e9 infekcie d\u00fdchacieho syst\u00e9mu  <\/span><\/span><\/span>
\n<\/span><\/span>–  \u010dast\u00e9 z\u00e1paly p\u013e\u00fac a priedu\u0161iek  <\/span><\/span><\/span>
\n<\/span><\/span>–  z\u00e1paly pr\u00ednosov\u00fdch dut\u00edn, nosn\u00e9 polypy<\/span><\/span><\/span>
\n<\/span><\/span>–  \u010dast\u00e9 n\u00e1v\u0161tevy toalety (mastn\u00e9, zap\u00e1chaj\u00face a objemn\u00e9 stolice)  <\/span><\/span><\/span>
\n<\/span><\/span>–  n\u00edzka telesn\u00e1 hmotnos\u0165, zmeny chut\u00ed do jedla  <\/span><\/span><\/span>
\n<\/span><\/span>–  prolaps recta  <\/span><\/span><\/span>
\n<\/span><\/span>–  ochorenie pe\u010dene  <\/span><\/span><\/span>
\n<\/span><\/span>–  pali\u010dkovit\u00e9 prsty  <\/span><\/span><\/span>
\n<\/span><\/span>–  neplodnos\u0165  <\/span><\/span><\/span>
\n<\/span><\/span>–  \u013eahk\u00e1 unavite\u013enos\u0165  <\/span><\/span><\/span>
\n<\/span><\/span>ochabnutos\u0165 vplyvom straty soli, najm\u00e4 v lete<\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n

Ako ovplyv\u0148uje CF \u017eiaka (\u0161tudenta)? <\/b><\/span><\/span><\/span><\/strong><\/p>\n

CF nem\u00e1 vplyv na ment\u00e1lne schopnosti, ale m\u00f4\u017ee poznamena\u0165 telesn\u00fa zdatnos\u0165 a citov\u00fa vyrovnanos\u0165. Ochorenie sa prejavuje ve\u013emi rozli\u010dne, niektor\u00e9 deti s\u00fa takmer bez probl\u00e9mov, in\u00e9 s\u00fa v\u00e1\u017ene postihnut\u00e9. Deti s CF zvy\u010dajne nie s\u00fa osloboden\u00e9 od telesnej v\u00fdchovy, ale cvi\u010di\u0165 m\u00f4\u017eu iba pod\u013ea vlastn\u00fdch s\u00edl. \u0160port a telesn\u00e1 aktivita s\u00fa pacientom c CF doporu\u010den\u00e9, nako\u013eko im pom\u00e1haj\u00fa udr\u017eiava\u0165 p\u013e\u00faca v dobrej kond\u00edcii. Lie\u010dba si vy\u017eaduje zvl\u00e1\u0161tny a ve\u013emi n\u00e1ro\u010dn\u00fd \u017eivotn\u00fd re\u017eim, ktor\u00fd tieto deti ob\u010das stavia bokom. Pom\u00f4c\u0165 im m\u00f4\u017eeme t\u00fdm, \u017ee porozumieme be\u017en\u00fdm frustr\u00e1ci\u00e1m plyn\u00facim z CF.  <\/span><\/span><\/span><\/p>\n

Ako sa CF lie\u010di?  <\/b><\/span><\/span><\/span><\/strong><\/p>\n

Zvl\u00e1da\u0165 CF je \u0165a\u017ek\u00e9 a \u010dasovo n\u00e1ro\u010dn\u00e9. Vylie\u010di\u0165 CF zatia\u013e nie je mo\u017en\u00e9, lie\u010dba je zameran\u00e1 na zpomalenie postupu ochorenia. Okrem \u0161tandardnej terapie mus\u00ed by\u0165 de\u0165om predkladan\u00e1 vysokokalorick\u00e1 dom\u00e1ca strava, bohat\u00e1 na tuky. Za hor\u00faceho po\u010dasia sa mus\u00ed obohacova\u0165 v\u00e4\u010d\u0161\u00edm mno\u017estvom soli. <\/span><\/span><\/span><\/p>\n

Celo\u017eivotn\u00e1 lie\u010dba sa sklad\u00e1 z t\u00fdchto zlo\u017eiek:<\/b><\/span><\/span><\/span><\/strong><\/p>\n

\u00b7 pacient s CF denne inhaluje a rehabilituje pomocou \u0161peci\u00e1lnych fyzioterapeutick\u00fdch postupov, ktor\u00e9 pom\u00e1haj\u00fa odstra\u0148ova\u0165 hust\u00fd hlien z p\u013e\u00fac (hygiena p\u013e\u00fac)  <\/span><\/span><\/span>
\n<\/span><\/span>\u00b7 u\u017e\u00edva ve\u013ek\u00e9 mno\u017estvo liekov (mukolytik\u00e1, antibiotik\u00e1, vitam\u00edny …), nieko\u013ekokr\u00e1t ro\u010dne aj antibiotik\u00e1 do \u017eily  <\/span><\/span><\/span>
\n<\/span><\/span>\u00b7 pred ka\u017ed\u00fdm jedlom mus\u00ed u\u017ei\u0165 umel\u00e9 enz\u00fdmy  <\/span><\/span><\/span>
\n<\/span><\/span>\u00b7 mus\u00ed dodr\u017eiava\u0165 vysokokalorick\u00fa di\u00e9tu  <\/span><\/span><\/span>
\n<\/span><\/span>\u00b7 udr\u017eiava si telesn\u00fa kond\u00edciu pravideln\u00fdm cvi\u010den\u00edm a \u0161portom  <\/span><\/span><\/span>
\n<\/span><\/span>\u00b7 podstupuje pravideln\u00e9 lek\u00e1rske kontroly a hospitaliz\u00e1cie  <\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n

Ak\u00fd \u010dast\u00fd je v\u00fdskyt CF?  <\/b><\/span><\/span><\/span><\/strong><\/p>\n

Ka\u017ed\u00fd 25-ty \u010dlovek v popul\u00e1cii je nosi\u010d g\u00e9nu CF. Na Slovensku je pod\u013ea \u0161tatistick\u00fdch \u00fadajov 250 000 nosi\u010dov CF, ka\u017ed\u00e9 400. man\u017eelstvo je potencion\u00e1lnym man\u017eelstvom dvoch nosi\u010dov. Aby sa narodilo die\u0165a s CF, musia by\u0165 obaja rodi\u010dia nosi\u010dmi g\u00e9nu CF. V tomto pr\u00edpade s\u00fa mo\u017enosti nasledovn\u00e9: <\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n

25 %-n\u00e1 mo\u017enos\u0165, \u017ee die\u0165a m\u00e1 CF  <\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n

50 %-n\u00e1 mo\u017enos\u0165, \u017ee die\u0165a je nosi\u010d g\u00e9nu CF <\/span><\/span><\/span><\/span><\/span><\/span><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Cystick\u00e1 fibr\u00f3za je z\u00e1va\u017en\u00e9 genetick\u00e9 ochorenie, ktor\u00e9 negat\u00edvne ovplyv\u0148uje kvalitu \u017eivota a pred\u010dasne ho skracuje. CF nie je n\u00e1kazliv\u00e1! Je to dedi\u010dn\u00e9 ochorenie, s ktor\u00fdm sa \u010dlovek narod\u00ed. V s\u00fa\u010dasnosti je mo\u017en\u00e9 CF odhali\u0165 u\u017e prenat\u00e1lne. \u017d\u013eazy s vonkaj\u0161\u00edm vylu\u010dovan\u00edm tvoria abnorm\u00e1lne hust\u00fd a patologick\u00fd hlien, ktor\u00fd sa usadzuje na slizniciach a upch\u00e1va \u017eivotne d\u00f4le\u017eit\u00e9 […]<\/p>\n","protected":false},"author":1,"featured_media":1003,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ngg_post_thumbnail":0,"footnotes":""},"class_list":["post-29","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"\nCystick\u00e1 fibr\u00f3za - klubcf.sk<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Cystick\u00e1 fibr\u00f3za - klubcf.sk\" \/>\n<meta property=\"og:description\" content=\"Cystick\u00e1 fibr\u00f3za je z\u00e1va\u017en\u00e9 genetick\u00e9 ochorenie, ktor\u00e9 negat\u00edvne ovplyv\u0148uje kvalitu \u017eivota a pred\u010dasne ho skracuje. CF nie je n\u00e1kazliv\u00e1! Je to dedi\u010dn\u00e9 ochorenie, s ktor\u00fdm sa \u010dlovek narod\u00ed. 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V s\u00fa\u010dasnosti je mo\u017en\u00e9 CF odhali\u0165 u\u017e prenat\u00e1lne. \u017d\u013eazy s vonkaj\u0161\u00edm vylu\u010dovan\u00edm tvoria abnorm\u00e1lne hust\u00fd a patologick\u00fd hlien, ktor\u00fd sa usadzuje na slizniciach a upch\u00e1va \u017eivotne d\u00f4le\u017eit\u00e9 […]","og_url":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/","og_site_name":"klubcf.sk","article_modified_time":"2018-05-02T18:22:05+00:00","og_image":[{"width":2560,"height":360,"url":"https:\/\/klubcf.sk\/wp-content\/uploads\/2018\/01\/BANNER-VRTULKA-02.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_misc":{"Predpokladan\u00fd \u010das \u010d\u00edtania":"4 min\u00faty"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/","url":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/","name":"Cystick\u00e1 fibr\u00f3za - klubcf.sk","isPartOf":{"@id":"https:\/\/klubcf.sk\/#website"},"primaryImageOfPage":{"@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/#primaryimage"},"image":{"@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/#primaryimage"},"thumbnailUrl":"https:\/\/klubcf.sk\/wp-content\/uploads\/2018\/01\/BANNER-VRTULKA-02.jpg","datePublished":"2017-11-20T21:52:40+00:00","dateModified":"2018-05-02T18:22:05+00:00","breadcrumb":{"@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/#breadcrumb"},"inLanguage":"sk-SK","potentialAction":[{"@type":"ReadAction","target":["https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/"]}]},{"@type":"ImageObject","inLanguage":"sk-SK","@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/#primaryimage","url":"https:\/\/klubcf.sk\/wp-content\/uploads\/2018\/01\/BANNER-VRTULKA-02.jpg","contentUrl":"https:\/\/klubcf.sk\/wp-content\/uploads\/2018\/01\/BANNER-VRTULKA-02.jpg","width":2560,"height":360},{"@type":"BreadcrumbList","@id":"https:\/\/klubcf.sk\/index.php\/cysticka-fibroza\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/klubcf.sk\/"},{"@type":"ListItem","position":2,"name":"Cystick\u00e1 fibr\u00f3za"}]},{"@type":"WebSite","@id":"https:\/\/klubcf.sk\/#website","url":"https:\/\/klubcf.sk\/","name":"klubcf.sk","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/klubcf.sk\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"sk-SK"}]}},"_links":{"self":[{"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/pages\/29","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/comments?post=29"}],"version-history":[{"count":11,"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/pages\/29\/revisions"}],"predecessor-version":[{"id":1814,"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/pages\/29\/revisions\/1814"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/media\/1003"}],"wp:attachment":[{"href":"https:\/\/klubcf.sk\/index.php\/wp-json\/wp\/v2\/media?parent=29"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}